My name is Evy Reviers.
Together with my partner Wim I have a little daughter Skye.
Being the daughter of an ALS patient, is my strong motivation to serve as Chairwoman of EUpALS. Also, I am CEO of ALS Liga Belgium.
I am particularly involved in regulatory aspects of ALS clinical trials, its guidelines and ethical aspects.
Therefore, I also took up via EURORDIS several positions in the European Reference Network ERN-EURO NMD, including Chairwoman of the Ethics Committee, member of the Patient Advisory Board, the Executive Committee and special working groups such as Neuromuscular. In addition, I am involved in the Community Engagement Task Force and the Health Technology Assesment Task Force.
Furthermore, I am a patient representative in scientific advice procedures at the European Medicines Agency (EMA), and a Director of the International Alliance of ALS/MND Associations.