My Name is Mia and I am turning 49 in 2020.
I’m from Stockholm, Sweden.
I’ve been having my diagnose since 2015. Here in Stockholm I represent ALS people at Karolinska Institute. I’m also running a Facebook group for relatives, carers, professionals and other ALS patients. Today we are 2300 members in the group so I more or less know everyone with the disease in Sweden.
My goal is to make sure that we all get equal healthcare over Sweden and to inform the ALS patients about clinical trials that is going on in Europe.