My name is Gudjon Sigurdsson.

I am married to Halla and we have 3 daughters.

I became diagnosed with ALS/MND in 2004.

From that day on I have been fighting for human rights in Iceland and around the world.

I am Chairman of MND ICELAND since 2005. I was Chairman for the International ALS/MND Alliance 2008-2012, and I am on the board now. I am a founding member of EUpALS and I am on the board.